EveryLife Foundation for Rare Diseases

United States · 45 Employees
We are dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.

概述

国家 United States
成立时间 2009
总部 Washington, District of Columbia
电话号码 +1(415) 884-0223
网站 http://www.everylifefoundation.org
LinkedIn http://www.linkedin.com/company/everylifeorg
Twitter https://twitter.com/curetheprocess
Facebook https://facebook.com/EveryLife4RareDiseases
员工数 45
行业 public policy,
简介 We are dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.

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常见问题

EveryLife Foundation for Rare Diseases 在哪里?

EveryLife Foundation for Rare Diseases 的总部位于 Washington, District of Columbia

EveryLife Foundation for Rare Diseases 的电话号码是多少?

EveryLife Foundation for Rare Diseases 的电话号码是 +1(415) 884-0223

EveryLife Foundation for Rare Diseases 的官方网站是什么?

EveryLife Foundation for Rare Diseases 的公司官方网站是 http://www.everylifefoundation.org

EveryLife Foundation for Rare Diseases 是做什么的?

EveryLife Foundation for Rare Diseases 的业务有哪些?

advocacy,patient engagment,rare diseases,public policy

EveryLife Foundation for Rare Diseases 的年收入是多少?

EveryLife Foundation for Rare Diseases 的收入是 4705000美元

EveryLife Foundation for Rare Diseases 有多少员工?

EveryLife Foundation for Rare Diseases 有 45 名员工

EveryLife Foundation for Rare Diseases 属于哪个行业?

EveryLife Foundation for Rare Diseases 从事以下行业: public policy

EveryLife Foundation for Rare Diseases 使用什么技术?

EveryLife Foundation for Rare Diseases 使用的一些流行技术包括: Cloudflare DNS,Outlook,Sendgrid

如何联系 EveryLife Foundation for Rare Diseases?

EveryLife Foundation for Rare Diseases 联系信息: 电话号码:+1(415) 884-0223, 网站:http://www.everylifefoundation.org, 邮箱:lcu***@***.org

EveryLife Foundation for Rare Diseases 的社交媒体链接是什么?

EveryLife Foundation for Rare Diseases 领英:http://www.linkedin.com/company/everylifeorg,fackbook:https://facebook.com/EveryLife4RareDiseases,twitte:https://twitter.com/curetheprocess

EveryLife Foundation for Rare Diseases 是一家上市公司吗?

不是

EveryLife Foundation for Rare Diseases 的最后一轮融资是什么时候?

暂无最近投资信息

谁投资 EveryLife Foundation for Rare Diseases?

EveryLife Foundation for Rare Diseases 有 0 家投资者,包括 。

管理层

Lindsey Cundiff

Associate Director of Patient Engagement, EveryLife Foundation

Lina

Finance and Operations Manager

Katelyn Laws

Rare Disease Legislative Advocates (RDLA) Program Manager

Collin Sovie

Alliance Development Manager

Shannon Felden

Senior Director of Advocacy

员工

Annie Kennedy

Chief of Policy, Advocacy, and Patient Engagement

Shannah Hudson

Foundation Advocate for Rare Disease

Kylie Barber

Health Policy Fellow

Megan Pinegar

Chief Operating Officer

Esha Cyril

Rare Disease Legislative Advocate

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