National Organization for Rare Disorders

United States · 170 Employees
The National Organization for Rare Disorders, a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 330 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services. NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products. NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). All NORD programs are focused on one ultimate goal -- to improve the lives of individuals and families affected by rare diseases. NORD is the official sponsor of Rare Disease Day in the US, an observance day held on the last day of February each year worldwide. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. To learn more, visit rarediseaseday.us. To learn more please visit the NORD website at www.rarediseases.org. You can also follow NORD on Twitter at @RareDiseases.

概述

国家 United States
成立时间 1983
总部 55 kenosia avenue, danbury, connecticut, united states
电话号码 +1 203-744-0100
网站 http://www.rarediseases.org
LinkedIn http://www.linkedin.com/company/national-organization-for-rare-disorders
Twitter https://twitter.com/rarediseases
Facebook https://www.facebook.com/NationalOrganizationforRareDisorders/
员工数 170
行业 nonprofit organization management,
简介 NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

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Cloudflare DNS

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Google Tag Manager

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Gravity Forms

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Hotjar

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Microsoft Office 365

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Shutterstock

Other

SignalR

CSS and JavaScript Libraries

The Trade Desk

Demand Side Platforms

WP Engine

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WordPress.org

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YouTube

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常见问题

National Organization for Rare Disorders 在哪里?

National Organization for Rare Disorders 的总部位于 55 kenosia avenue, danbury, connecticut, united states

National Organization for Rare Disorders 的电话号码是多少?

National Organization for Rare Disorders 的电话号码是 +1 203-744-0100

National Organization for Rare Disorders 的官方网站是什么?

National Organization for Rare Disorders 的公司官方网站是 http://www.rarediseases.org

National Organization for Rare Disorders 是做什么的?

NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

National Organization for Rare Disorders 的业务有哪些?

rare diseases,patient assistance,patient support,rare disease information,advocacy,information for medical professionals,research,online communities,orphan diseases

National Organization for Rare Disorders 的年收入是多少?

National Organization for Rare Disorders 的收入是 13714000美元

National Organization for Rare Disorders 有多少员工?

National Organization for Rare Disorders 有 170 名员工

National Organization for Rare Disorders 属于哪个行业?

National Organization for Rare Disorders 从事以下行业: nonprofit organization management

National Organization for Rare Disorders 使用什么技术?

National Organization for Rare Disorders 使用的一些流行技术包括: Active Campaign,AddThis,Backbone JS Library,Bootstrap Framework,Cloudflare DNS,Gmail,Google Analytics,Google Apps,Google Custom Search,Google Font API,Google Tag Manager,Gravity Forms,Hotjar,Linkedin Marketing Solutions,Microsoft Office 365,Mobile Friendly,Outlook,Shutterstock,SignalR,The Trade Desk,WP Engine,WordPress.org,YouTube,reCAPTCHA

如何联系 National Organization for Rare Disorders?

National Organization for Rare Disorders 联系信息: 电话号码:+1 203-744-0100， 网站:http://www.rarediseases.org， 邮箱：kan***@***.org

National Organization for Rare Disorders 的社交媒体链接是什么?

National Organization for Rare Disorders 领英：http://www.linkedin.com/company/national-organization-for-rare-disorders,fackbook：https://www.facebook.com/NationalOrganizationforRareDisorders/,twitte:https://twitter.com/rarediseases

National Organization for Rare Disorders 是一家上市公司吗?

不是

National Organization for Rare Disorders 的最后一轮融资是什么时候?

暂无最近投资信息

谁投资 National Organization for Rare Disorders?

National Organization for Rare Disorders 有 0 家投资者,包括 。

管理层

Kristen Angell

Associate Director of Advocacy

Leslie Mahaney

Education Programs Manager

Amanda Scull

Research Project Manager

Kasey Baker

Associate Director Of Technology

Ariel Markowitz-Shulman

Associate Director of Strategic Planning

员工

Dorothy Keating

Accounts Payable Manger

Sara Sharpe

Ohio Rare Action Network Volunteer Community Engagement Liaison

Marsha Lanes

Genetic Counselor/Medical Editor

Lori Macneill

Assistant Controller

Christine Savino

Information Specialist

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