Claire Nolan

INTERNATIONAL BUREAU FOR EPILEPSY

Providing better quality of life for epileptics and their caregivers is the mission of the International Bureau for Epilepsy (IBE). Our vision is that ignorance and fear about epilepsy will be replaced by understanding and care. The IBE is made up of laypersons and professionals interested in the medical and non-medical aspects of epilepsy. We address social problems such as education, employment, insurance, driving licence restrictions and public awareness. We do this through funding social improvement programmes for people with epilepsy and their families, creating means for worldwide exchange of information and, where possible, setting standards which provide an international policy focus and identity for all persons with epilepsy. Much of this work is accomplished through the IBE working commissions, composed of volunteers who are experts in their subjects. The IBE was established in 1961 and has grown to almost 140 chapters in over 100 countries all around the globe. The Bureau is the recognised international umbrella body representing national epilepsy organisations that have a specific interest in improving the social condition and quality of life of people with epilepsy and their carers. The IBE is an incorporated, not-for-profit, international organisation constituted in accordance with law and registered in the District of Columbia, USA. (Charter ID 721834-DNP). The Bureau also works in close liaison with the International League against Epilepsy (ILAE), an organisation of medical professionals involved in the medical and scientific issues of epilepsy. IBE is funded mainly by membership dues from its chapters and by financial support from other contributors.