Rebecca Sanders

Lipodystrophy UK

Lipodystrophy is a group of rare conditions characterised by the lack of subcutaneous fat (normal fat storage under the skin). Lipodystrophy can be generalised (total fat loss) or partial (partial fat loss) and familial (inherited) or acquired (not inherited). The inability to store fat under the skin causes fat to be stored in places such as the muscles and liver which leads to severe metabolic complications including insulin resistance, diabetes, dyslipidaemia, heart disease, kidney disease, fatty liver disease and many others. Currently, there is no cure for Lipodystrophy and only the secondary complications can be managed/treated. Lipodystrophy affects approximately 1 in 1 million people across the world. Lipodystrophy UK is a dedicated UK charity set up to support people with Lipodystrophy. Our mission is to raise awareness of Lipodystrophy, support those who may be affected by Lipodystrophy and advocate for excellent clinical care and scientific research into these conditions. Registered Charity Number: 1175462 Contact Information: Lipodystrophy UK Email: LipodystrophyUK@hotmail.com FB: LipodystrophyUK Website: www.lipodystrophy.co.uk Twitter: @LipodystrophyUk You can help LDUK and the community we support by donating what you can: https://make-a-donation.org/charity/lipodystrophy-uk We are using make-a-donation.org as the charity receives 100% of the funds raised and there are no subscription fees. Everything you give comes straight to us which in turn will go towards supporting people with Lipodystrophy. Do you shop online? You can also support LDUK by signing up to www.easyfundraising.org.uk an initiative to raise money for charity that doesn't cost you or the charity a penny. By creating an account and linking to LDUK, every time you make an online purchase, participating retailers donate a percentage of the total cost to LDUK. https://www.easyfundraising.org.uk/causes/lipodystrophyuk/