电子邮件 | may***@***.org | 获取Email |
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电子邮件 | may***@***.org | 获取Email |
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Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA)—a disease that takes away a person's ability to walk, eat, or breathe. It is the number one genetic cause of death for infants. Since 1984, we've directed and invested in comprehensive research that has shaped the scientific community's understanding of SMA. We continue to push for breakthroughs in treatment that will strengthen our children's bodies, extend life, and lead to a cure. We have deep expertise in every aspect of SMA—from the day-to-day realities to the nuances of care options—and until we have a cure, we'll do everything we can to support children and families affected by the disease. Cure SMA is a non-profit organization which has funded and directed over $82 million for leading SMA research programs. We have 36 Chapters throughout the United States and over 120,000 members and supporters. We also host the world's largest Annual SMA Conference with over 1,500 families and researchers from around the world in attendance. Learn more about how you can help us reach a treatment and cure at www.cureSMA.org.
公司 | Cure SMA |
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职位 | Vice President of Policy & Advocacy |
地点 | United States |
http://www.linkedin.com/in/maynard-friesz-b98a054 | |
部门 | |
头衔 | Vice President of Policy & Advocacy |
Maynard Friesz 在 Cure SMA 担任 Vice President of Policy & Advocacy
Maynard Friesz 在 Cure SMA 的职位是 Vice President of Policy & Advocacy
Maynard Friesz 的电子邮件地址是 may***@***.org
Maynard Friesz 的电话号码是 -
Maynard Friesz 的公司电话号码是 +180****
Maynard Friesz 在 nonprofit organization management 工作。
Maynard Friesz 的一些同事包括Sherryl D、Jennifer M、Rickk M、Ally HenkelKaren McRory-Negrin、。
Maynard Friesz联系方式: 电子邮件地址:may***@***.org 电话号码:-
Maynard Friesz 的个人领英是:http://www.linkedin.com/in/maynard-friesz-b98a054
Maynard Friesz 的办公地点:925 busse road, elk grove village, illinois, united states
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